Sammy hasn't been doing real well lately, and has been essentially unwilling to stand up or move much. She mostly resides in her mothers arms.
We had planned on starting her perilous journey tomorrow by checking in for our long stay (30-60 days in isolation). However, this morning, after getting up, Sammy's G-tube came completely out of her stomach, leaving behind a hole into her stomach the size of a half dollar coin. The sight was gut wrenching, and it was oozing thick liquidity awfulness the likes of which was never meant to be seen by non medical personnel. The smell emanating from this orifice was also never meant to be consumed. We quickly rushed out the door, opting to not call an ambulance and drive their ourselves.
We called ahead, and made arrangements to be seen in the IR floor instead of dancing through uninformed ER docs and have the tube re-inserted by the right people asap. When your medical bills can fund a new wing of the hospital you have special numbers you can call. Thank god for insurance. Thankfully, the insurance plan through Jump Trading is actually quite amazing. So blue cross thank you.
There was a chance that the Gtube couldn't be reconnected if there was something dislodged. Thankfully, we were able to reconnect it. Some debatethe over the area around the Gtube as if its infected or not. She has so few cells her skin isn't healing at all, so it's hard to tell. IR doc was amazing. I'm still amazed at the variance in doctors here. There are amazing ones and there are people here who shouldn't even be allowed to play board game Operation.
Gtube replacement was a small win as a second PICC line was the other option. Two PICC lines limit you to IV everything, including nutrition. Nutrition in IV form is spraying your liver with machine gun fire.
We are hospital now for good. Chemo starts tomorrow. She still has her hair, but we will cut it very soon.
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