Sam and I are now checked in for the long haul. It happened a day early after an ER trip yesterday morning to replace the G Tube that fell out. We were staring at a huge hole with stuff oozing out the entire trip there. They put her under and were able to surgically replace it but the surgical hole is just too large around the tube, so it won't close properly due to not having any white blood cells. Infection and pain with the large hole will continue to be a problem to monitor until engraftment (when Kaeden's cells start working in Sam's body).
Sam is in a ton of pain right now. She is sweating thru pillow after pillow and shaking. The "Pain Team" took a look at her last night and put her on a constant morphine drip with a push button I can use whenever she needs more. Kind of a scary responsibility...
Sam will start chemo today. We will probably shave her head today or tomorrow. :(
On the brighter side, I gave Kaeden a "bye bye box" yesterday with a few toys, a personalized book Lex helped me with, and two stuffed dolls with pictures of Sammi and me on the the front.
Super Kaeden! |
Super Kaeden! |
The 2nd picture of Super Kaeden is hilarious and amazing.
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