Ok Sam just recieved kaedens marrow and so far no reactions! The more expected difficulties will come post engraftment which typically takes place in the next week. Rashes and fevers are very common first signs that kaedens marrow is beginning to try to work in her body.
Kaeden was a bit scared and had a very hoarse sore throat from the breathing tube when he woke up. He opened his eyes and looked at us as we told him we were so proud of him. I asked if anything hurt and he shook his head yes. He then asked in a sweet/scratchy vice , "Is Sam all better now ?" It really is an overwhelming emotional feeling to watch one young child sacrifice without question for another.
He has been recovering on the clinic floor eating sweets and watching tv. He is on morphine and had to get a dose of zofran after feeling very nauseous and dizzy when trying to stand. The transplant doc checked his hemaglobin and it dropped from 13 to 9 after the procedure which she expected and said no transfusion is needed for him if it's above 8. He will need to rest at least through the weekend and it will take a few weeks for his body to regenerate the lost cells. We are hopeful that he will bounce back with as much energy as we are all accustomed to super kaeden having.
Some people have told me today is National Sibling Day. We had no idea but can't imagine a more appropriate display of the power of sibling love. As we look at our two babies, we hope someday this blog and our pictures will help capture some of the emotion and importance of today for these two goofballs to look back at as adults. As my mom helps with Kaeden upstairs, my brother naps on a pull out couch in Sam's room and Aunt Bex runs errand all over the hospital to take care of all of us , Brandon and I are not only blown away by sibling love , but the feeling of family love as a whole...
Chalk today up as a victory in this battle.., a ways to go yet , but we are on our way now !!!!
A very special day. Thank you for sharing. Thank you to all your amazing team.
ReplyDeleteI couldn't be prouder of my niece and nephew, and my brother and sister-in-law. You four are truly an amazing family and I am so damn happy this day has finally come. Onwards and upwards to full recovery for both kids and exhausted parents and family. Love to you ALL.
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