Procedures, Procedures... Day +34

Sam returned to clinic this morning and while the rash had improved, it was not gone so doc wanted to go ahead with plan for skin biopsy and bone marrow aspirate. Her lab numbers were much proved today though. So much so, that I asked if we should re-run them to make sure they weren't mixed up with another patient (this did happen to us once during transplant). The doc said she thought it was because of the steroid though which was "fending off" whatever she thought was eating up her platelets. We should have results from both biopsies by tomorrow morning at the latest. We are supposed to continue the steroid until Monday clinic visit at least which has so far not produced any hopeful benefit of increased appetite but does make her more dizzy and irritable. Seriously, not something a toddler needs additional dosage of:)

Sam's transition into and out of surgery was not as smooth today as in the past as she is building a tolerance up to the iv anti-anxiety they usually give thru her picc line. Really hoping this is the last procedure we will need for awhile! The only other changes are decreasing one gvhd prevention med from twice per day to one and we get to stop one antibiotic tomorrow. I only mention this because the amount of meds Sam is on is insane. Below is a picture of her "morning meds". We call this her "pre breakfast" of champions:) So anytime one is even decreased in frequency, it's a son for us. I hate Sam having the g tube, but have no idea how we would get all that is needed in her otherwise. Today her chemistries showed slight dehydration and low magnesium but hoping the dehydration is just from not drinking much before the surgery. If she is eating enough and we can decrease her meds enough, the doc said we can talk about getting rid of her g tube at day + 100. I am all for it as long as we aren't staring at this "line up " two to three times per day!

Hoping for a quiet weekend, great bone marrow results showing tons of healthy baby cells, and a as harmless as possible rash explanation!