Saturday, May 17, 2014

Biopsy Results...

SAMs bone marrow aspiration showed both "mature and immature" cells. The doc said she was very pleased with the cellularity and it showed that Kaedens marrow is making new cells in her body. This is good news and nice confirmation for sure.

The skin biopsy showed no indications of possible infection as the cause of the rash but was generally inconclusive as far as if it is definitely graft vs. host or not. This was a little unsatisfying as we were hoping for a more definitive answer but at least it wasn't a harmful infectious cause.

The plan is to keep her on the steroid until Monday and evaluate her lab numbers and rash. If all looks ok still, we will slowly start to taper down the steroid dose and watch to see if rash returns or platelets begin to drop again. If they do, then we will need to increase again and they will have to try to again decide what is "eating up her platelets" that the steroid is keeping at bay.

The only other conversation going on is about SAMs ebv numbers. Ebv like cmv etc. is a common virus that many of is have in our systems that our bodies are immune to. EBV can cause lymphoma in transplant patients though which is obviously something we want to avoid. Right now SAMs ebv numbers have risen from the 10 thousands to the 30 thousands. If she reaches 100 thousand, she will need to have ct scans of her body examining her lymph nodes and then receive at least four weeks of an iv medication that can damage her kidneys. Again, we are hoping it won't get to this point and her numbers will hold steady, but these sort of things are always being monitored and watched. I told

So far it's been a quiet weekend besides a few stitches on her back that annoy her from the biopsy and a puncture mark and bruise from her now third bone marrow biopsy, she really has been doing quite well. Going to the bathroom is still painful for her which is difficult but all in all we are chugging along and hope to decrease steroids Monday.

2 comments:

  1. Certainly good news to get confirmation that Kaeden's super marrow is in fact working and Sam is producing new cells! I imagine it is draining to continue to have all these aspects monitored for the "what-ifs" but at least she is being followed closely. Again, definitely seems like some attributes from her Mom shining through with her resilience and strength. Keep up the chugging!!

    P.S. I am still heavily engaged with anticipating and reading your blogs so please keep them coming when you can :)

    XOXOXO
    -Leah

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  2. How quickly did she go from the 10 thousands to 30 thousands? Glad to see the mature and immature cell growth. Yipee!!!!!!

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